When you or your loved one receives a GBM diagnosis, you may feel overwhelmed with information. In addition to what your healthcare team may have shared, you may be doing research yourself, and friends and family may send you things they've read.
It may be a lot to take in. But when you're ready, it's important to get organized and take the time to talk to your doctor and learn as much as you can about what treatments may work for you, including Optune.
Here are some topics that other GBM patients and their caregivers found important when learning more about Optune.
If you have newly diagnosed GBM and you and your doctor decide to start Optune, it would be used together with the chemotherapy temozolomide (TMZ), after you have already had surgery and radiation with TMZ.
If you have recurrent GBM and you and your doctor decide to start Optune, Optune would be used alone once treatment options like surgery and radiation have been exhausted.
After talking through your treatment plan, your doctor may prescribe Optune.
It's important to note that your doctor must be certified to prescribe Optune. If your doctor is not certified, he or she may refer you to another doctor who is certified. There are certified treatment centers across the United States. You can visit Find a Treatment Center to locate one near you.
As soon as you are ready to start Optune, Novocure will connect with you to discuss insurance coverage and financial assistance, and schedule in-person device training.
nCompass™ connects patients and their caregivers with a dedicated nCompass Device Support Specialist (DSS) and access to 24/7 technical support. Your DSS will be there to provide device education, help you set up the device for the first time, answer questions, and provide information as to how you may be able to incorporate Optune into your life.
Learn more about patient and caregiver support here.
Continuous treatment with Optune can be received almost anywhere. You may be able to use Optune while you go about your daily routine at work, for some travel, and at social functions like family get-togethers. No matter where you are, it’s important that you keep the device and arrays from getting wet.
In order for Optune to work properly, you will need to keep your head shaved while using the device. However, loose-knit wigs, hats, and head coverings can all be worn over the arrays.
1. Optune Instructions For Use. Novocure 2016.
Locate a nearby treatment center where doctors are certified to prescribe Optune.Find a certified center
Watch Marcia as she shares her journey with Optune.
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Optune is a wearable, portable, FDA-approved device indicated to treat a type of brain cancer called glioblastoma multiforme (GBM) in adult patients 22 years of age or older.
If you have newly diagnosed GBM, Optune is used together with a chemotherapy called temozolomide (TMZ) if:
If your tumor has come back, Optune can be used alone as an alternative to standard medical therapy if:
Optune is not for everyone. Talk to your doctor if you have:
Do not use Optune if you are pregnant or are planning to become pregnant. It is not known if Optune is safe or effective during pregnancy.
Optune should only be used after receiving training from qualified personnel, such as your doctor, a nurse, or other medical staff who have completed a training course given by Novocure™, the maker of Optune.
Most common side effects of Optune when used together with chemotherapy (temozolomide, or TMZ) were low blood platelet count, nausea, constipation, vomiting, tiredness, scalp irritation from the device, headache, seizure, and depression.
The most common side effects when using Optune alone were scalp irritation (redness and itchiness) and headache. Other side effects were malaise, muscle twitching, fall and skin ulcers.
Talk to your doctor if you have any of these side effects or questions.
Please click here to see the Optune Instructions For Use (IFU) for complete information regarding the device's indications, contraindications, warnings, and precautions.
Patient Journey videos on this site and all images labeled as Optune users or caregivers depict actual patients and caregivers. All other depictions of patients, caregivers, and healthcare professionals are actor portrayals.
Optune is intended as a treatment for adult patients (22 years of age or older) with histologically-confirmed glioblastoma multiforme (GBM).