Trying Times: Adhering to Optune® and finding a balance

Adhering to Optune

I was and still am very determined not to allow Optune to weigh down how I choose to live my life. It was always a question of how I could adjust so that the device can operate on the terrain I occupy and the circumstances surrounding my physical lifestyle. I have battled with adapting Optune to my physically active lifestyle while living in San Diego. I am big into hiking and cycling, and I can continue to do these things with my doctor’s permission.The heat-related issues of the sun shining on my device and setting off the error sensor along with having to pack extra batteries while carrying Optune are equally challenging for me. Often, I thought to myself, “How am I going to adapt with this thing?”

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Finding a solution

I made a conscious effort to find reasons to make things work with Optune.To keep an open mind,I took suggestions from family members such as wearing a cool towel under a bucket hat and buying an assortment of hats while I hike.

I think more than anything, my family members and those in the Optune community have reached out and encouraged me to find little ways to make the device more adaptable to my daily activities. I have received lifestyle related advice, travel tips, and general words of encouragement to keep wearing the device and keep going.


Staying the course

In my heart, I know I have to give it my best shot to use Optune as much as possible wherever I was or whatever I was doing—attending a friend’s wedding, a family trip, or just going on a hike or bike ride.

Stay the course. Just like anything that is new, there will be challenges, but it does get easier. No one ever became good at something over night and I believe adhering to this treatment is no exception.

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Topics: Learning About Optune, Daily Life with Optune
By Osmond, Optune patient

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What is Optune® approved to treat?

Optune is a wearable, portable, FDA-approved device indicated to treat a type of brain cancer called glioblastoma multiforme (GBM) in adult patients 22 years of age or older.

Newly diagnosed GBM

If you have newly diagnosed GBM, Optune is used together with a chemotherapy called temozolomide (TMZ) if:

Recurrent GBM

If your tumor has come back, Optune can be used alone as an alternative to standard medical therapy if:

What is Optune Lua approved to treat?

Optune Lua is a wearable, portable, FDA-approved device indicated for the treatment of adult patients, with unresectable, locally advanced or metastatic, malignant pleural mesothelioma (MPM) to be used together with standard chemotherapy (pemetrexed and platinum-based chemotherapy).

Who should not use Optune for GBM or Optune Lua for MPM?

Optune for GBM and Optune Lua for MPM are not for everyone. Talk to your doctor if you have:

Do not use Optune for GBM or Optune Lua for MPM if you are pregnant or are planning to become pregnant. It is not known if Optune/Optune Lua is safe or effective during pregnancy.

What should I know before using Optune for GBM or Optune Lua for MPM?

Optune and Optune Lua should only be used after receiving training from qualified personnel, such as your doctor, a nurse, or other medical staff who have completed a training course given by Novocure®, the maker of Optune and Optune Lua.

What are the possible side effects of Optune for GBM and Optune Lua for MPM?

The most common side effects of Optune when used together with chemotherapy for GBM (temozolomide or TMZ) were low blood platelet count, nausea, constipation, vomiting, tiredness, seizure, and depression.

The most common side effects when using Optune alone for GBM were scalp irritation (redness and itchiness) and headache. Other side effects were malaise, muscle twitching, fall and skin ulcers.

The most common side effects of Optune Lua when used together with chemotherapy for MPM (pemetrexed and platinum-based chemotherapy) were low red blood cell count, constipation, nausea, tiredness, chest pain, fatigue, skin irritation from device use, itchy skin, and cough.

Other potential adverse effects associated with the use of Optune Lua include: treatment related skin irritation, allergic reaction to the plaster or to the gel, electrode overheating leading to pain and/or local skin burns, infections at sites of electrode contact with the skin, local warmth and tingling sensation beneath the electrodes, muscle twitching, medical device site reaction and skin breakdown/skin ulcer.

Talk to your doctor if you have any of these side effects or questions.

Caution: Federal law restricts Optune Lua to sale by or on the order of a physician. Humanitarian Device. Authorized by Federal Law for use in the treatment of adult patients with unresectable, locally advanced or metastatic, malignant pleural mesothelioma concurrently with pemetrexed and platinum-based chemotherapy. The effectiveness of this device for this use has not been demonstrated.

Please click here to see the Optune Instructions for Use (IFU) for complete information regarding the device's indications, contraindications, warnings, and precautions.

Please click here to see the Optune Lua IFU for complete information regarding the device's indications, contraindications, warnings, and precautions.

On this site, patient and healthcare professional videos as well as all images labeled as Optune users, caregivers, or healthcare professionals depict actual patients, caregivers, and healthcare professionals. All other depictions of patients and caregivers are actor portrayals. Patient images reflect the health status of the patients at the time each photo was taken.

What is Optune approved to treat?

Optune is indicated to treat a type of brain cancer called glioblastoma multiforme (GBM) in adult patients 22 years of age or older.