Shared Decision Making with Optune®

Finding the Right Care for You

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Hello, everyone!

I want to share a little about my Optune journey.

After I did research into potential treatments for glioblastoma (GBM), I discovered Optune. I originally talked to my local doctor about it, but he was unable to prescribe it at the time. A doctor friend who had also been diagnosed with GBM reached out to me and said he thought that Optune would be a good fit for me. He recommended a medical center that could prescribe Optune, and I immediately looked into it. It was an eight-hour drive for my husband, Cecil, and me, but we were determined to do everything we could to potentially stop my GBM from progressing. After talking more with the oncologist at the center, I was prescribed Optune.

Eventually my local doctor said he felt more comfortable administering my treatment. I moved to him for my main care and had my last appointment at the medical center in June 2021. But I’m still pleased with all of my healthcare team. Both my doctors are very supportive and made sure I knew how impressed they were with my progress.
 

Asking Doctors Questions

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Cecil drives me to every doctor’s appointment. Before we go, he and I usually write down any questions we have about GBM or my treatment. Sometimes I’ll take notes so I can remember the answers each doctor has given us. Cecil always listens carefully so he can catch any information that I might miss.

We've found that our doctors have been very supportive when it comes to answering our questions and providing the care we need. Don't be afraid to ask your doctors questions—even if they seem trivial to you at first.
 

A Hands-On Caregiver

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Cecil took an active role with my doctors when it came to my care. He wanted to know the statistics and prognosis for my GBM right away. He was very supportive as we researched Optune and was very excited to hear about it when my doctor explained it.

He has been hands-on since my first Optune application…and he likes to remind me that he’s changed my arrays hundreds of times!

When it’s time to change them, I shave my head and Cecil or my son, Ben, will follow the array placement map and change the arrays. They both do a good job—they’re real particular. The more Cecil changed my arrays, the more comfortable he felt at doing it, and having training from our DSS gave him extra confidence.

Getting used to Optune took a village—Cecil, Ben, me, and my doctors. But I refuse to sit down and give up when it comes to my care. A positive attitude means so much. There is hope.

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Topics: Daily Life with Optune, For Caregivers
By Kim, Optune patient

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What is Optune® approved to treat?

Optune is a wearable, portable, FDA-approved device indicated to treat a type of brain cancer called glioblastoma multiforme (GBM) in adult patients 22 years of age or older.

Newly diagnosed GBM

If you have newly diagnosed GBM, Optune is used together with a chemotherapy called temozolomide (TMZ) if:

Recurrent GBM

If your tumor has come back, Optune can be used alone as an alternative to standard medical therapy if:

What is Optune Lua approved to treat?

Optune Lua is a wearable, portable, FDA-approved device indicated for the treatment of adult patients, with unresectable, locally advanced or metastatic, malignant pleural mesothelioma (MPM) to be used together with standard chemotherapy (pemetrexed and platinum-based chemotherapy).

Who should not use Optune for GBM or Optune Lua for MPM?

Optune for GBM and Optune Lua for MPM are not for everyone. Talk to your doctor if you have:

Do not use Optune for GBM or Optune Lua for MPM if you are pregnant or are planning to become pregnant. It is not known if Optune/Optune Lua is safe or effective during pregnancy.

What should I know before using Optune for GBM or Optune Lua for MPM?

Optune and Optune Lua should only be used after receiving training from qualified personnel, such as your doctor, a nurse, or other medical staff who have completed a training course given by Novocure®, the maker of Optune and Optune Lua.

What are the possible side effects of Optune for GBM and Optune Lua for MPM?

The most common side effects of Optune when used together with chemotherapy for GBM (temozolomide or TMZ) were low blood platelet count, nausea, constipation, vomiting, tiredness, seizure, and depression.

The most common side effects when using Optune alone for GBM were scalp irritation (redness and itchiness) and headache. Other side effects were malaise, muscle twitching, fall and skin ulcers.

The most common side effects of Optune Lua when used together with chemotherapy for MPM (pemetrexed and platinum-based chemotherapy) were low red blood cell count, constipation, nausea, tiredness, chest pain, fatigue, skin irritation from device use, itchy skin, and cough.

Other potential adverse effects associated with the use of Optune Lua include: treatment related skin irritation, allergic reaction to the plaster or to the gel, electrode overheating leading to pain and/or local skin burns, infections at sites of electrode contact with the skin, local warmth and tingling sensation beneath the electrodes, muscle twitching, medical device site reaction and skin breakdown/skin ulcer.

Talk to your doctor if you have any of these side effects or questions.

Caution: Federal law restricts Optune Lua to sale by or on the order of a physician. Humanitarian Device. Authorized by Federal Law for use in the treatment of adult patients with unresectable, locally advanced or metastatic, malignant pleural mesothelioma concurrently with pemetrexed and platinum-based chemotherapy. The effectiveness of this device for this use has not been demonstrated.

Please click here to see the Optune Instructions for Use (IFU) for complete information regarding the device's indications, contraindications, warnings, and precautions.

Please click here to see the Optune Lua IFU for complete information regarding the device's indications, contraindications, warnings, and precautions.

On this site, patient and healthcare professional videos as well as all images labeled as Optune users, caregivers, or healthcare professionals depict actual patients, caregivers, and healthcare professionals. All other depictions of patients and caregivers are actor portrayals. Patient images reflect the health status of the patients at the time each photo was taken.

What is Optune approved to treat?

Optune is indicated to treat a type of brain cancer called glioblastoma multiforme (GBM) in adult patients 22 years of age or older.