Optune Buddy call
I encourage people considering Optune to do a buddy call because you can get a wealth of information from people who’ve actually used it and are going through what you’ve gone through and have an understanding of that and an appreciation that other people don’t.
So the buddy call system is where somebody thinking about using Optune or has already started it can call in to speak to somebody who’s experienced with using Optune that works as an ambassador for them.
Novocure will arrange a call at your convenience with someone who’s been using it for a while, and you have like, plenty of time to ask questions and your questions will get answered.
I love the program. The people I talk to are generally recently diagnosed or have just started on Optune.
Glioblastoma doesn’t discriminate against people. I’ve spoken to younger people, older people, anyone and everyone and the truth is, everyone’s going through a tough fight with it, and it’s very–the calls can get very emotional and, it’s just special to be able to speak to them and help them through it in some small way.
They really appreciate being able to connect with somebody else who has the disease and learn the little tips and tricks, that I’ve learned and can share with them.
The most common questions are how do you sleep with it, how do you bathe with it, how do you travel.
I think sleeping with the device is a big topic for discussion. People are worried about maybe if they have to wear it at night, which I think is the easiest time to wear it, and just how to, like manage the device in bed, different things like that.
If I had a friend that was diagnosed, I mean, at, at a minimum, make a call to the Buddy Program because I feel like you can learn so much more from somebody who’s actually using Optune because they’re actually living with it every day.
I would strongly recommend it for people to talk to other patients, just to be able to connect with somebody, learn their experience, sort of educate yourself on what it’s going to be like using Optune. It can be sort of a foreign device to you, if you’re not familiar with it.
And I do get questions about, you know, how do you handle questions that people ask you when they see you? And I have funny responses that I enjoy telling them. One of the things I do for little kids, they’ll point and be like, Mommy, what’s that? And their parents are embarrassed and running away.
We had a little 3-year-old friend come out and said, what’s that on your head? And Jeanneane said, that’s my mind reading device from NASA.
You’re excited for Halloween coming up. Yes.
She literally put her head up next to it.
Connect With an Optune Buddy
Find out how a Buddy could help answer your questions.