Optune Buddy call

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JEANNEANE:

00:00:15

I encourage people considering Optune to do a buddy call because you can get a wealth of information from people who’ve actually used it and are going through what you’ve gone through and have an understanding of that and an appreciation that other people don’t.

JB:

So the buddy call system is where somebody thinking about using Optune or has already started it can call in to speak to somebody who’s experienced with using Optune that works as an ambassador for them.

JEANNEANE:

00:00:39

Novocure will arrange a call at your convenience with someone who’s been using it for a while, and you have like, plenty of time to ask questions and your questions will get answered.

TAYLOR:

I love the program. The people I talk to are generally recently diagnosed or have just started on Optune.

JB:

Glioblastoma doesn’t discriminate against people. I’ve spoken to younger people, older people, anyone and everyone and the truth is, everyone’s going through a tough fight with it, and it’s very–the calls can get very emotional and, it’s just special to be able to speak to them and help them through it in some small way.

TAYLOR:

00:01:17

They really appreciate being able to connect with somebody else who has the disease and learn the little tips and tricks, that I’ve learned and can share with them.

JEANNEANE:

The most common questions are how do you sleep with it, how do you bathe with it, how do you travel.

JB:

00:01:37

I think sleeping with the device is a big topic for discussion. People are worried about maybe if they have to wear it at night, which I think is the easiest time to wear it, and just how to, like manage the device in bed, different things like that.

TAYLOR:

If I had a friend that was diagnosed, I mean, at, at a minimum, make a call to the Buddy Program because I feel like you can learn so much more from somebody who’s actually using Optune because they’re actually living with it every day.

JB:

00:02:10

I would strongly recommend it for people to talk to other patients, just to be able to connect with somebody, learn their experience, sort of educate yourself on what it’s going to be like using Optune. It can be sort of a foreign device to you, if you’re not familiar with it.

JEANNEANE:

And I do get questions about, you know, how do you handle questions that people ask you when they see you? And I have funny responses that I enjoy telling them. One of the things I do for little kids, they’ll point and be like, Mommy, what’s that? And their parents are embarrassed and running away.

JENNY:

00:02:37

We had a little 3-year-old friend come out and said, what’s that on your head? And Jeanneane said, that’s my mind reading device from NASA.

JEANNEANE:

You’re excited for Halloween coming up. Yes.

JENNY:

She literally put her head up next to it.

Learn how the Optune Buddy Program connects you with current users.
Topics: Support Resources

Connect With an Optune Buddy

Find out how a Buddy could help answer your questions.

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What is Optune® approved to treat?

Optune is a wearable, portable, FDA-approved device indicated to treat a type of brain cancer called glioblastoma multiforme (GBM) in adult patients 22 years of age or older.

Newly diagnosed GBM

If you have newly diagnosed GBM, Optune is used together with a chemotherapy called temozolomide (TMZ) if:

Recurrent GBM

If your tumor has come back, Optune can be used alone as an alternative to standard medical therapy if:

What is Optune Lua approved to treat?

Optune Lua is a wearable, portable, FDA-approved device indicated for the treatment of adult patients, with unresectable, locally advanced or metastatic, malignant pleural mesothelioma (MPM) to be used together with standard chemotherapy (pemetrexed and platinum-based chemotherapy).

Who should not use Optune for GBM or Optune Lua for MPM?

Optune for GBM and Optune Lua for MPM are not for everyone. Talk to your doctor if you have:

Do not use Optune for GBM or Optune Lua for MPM if you are pregnant or are planning to become pregnant. It is not known if Optune/Optune Lua is safe or effective during pregnancy.

What should I know before using Optune for GBM or Optune Lua for MPM?

Optune and Optune Lua should only be used after receiving training from qualified personnel, such as your doctor, a nurse, or other medical staff who have completed a training course given by Novocure®, the maker of Optune and Optune Lua.

What are the possible side effects of Optune for GBM and Optune Lua for MPM?

The most common side effects of Optune when used together with chemotherapy for GBM (temozolomide or TMZ) were low blood platelet count, nausea, constipation, vomiting, tiredness, seizure, and depression.

The most common side effects when using Optune alone for GBM were scalp irritation (redness and itchiness) and headache. Other side effects were malaise, muscle twitching, fall and skin ulcers.

The most common side effects of Optune Lua when used together with chemotherapy for MPM (pemetrexed and platinum-based chemotherapy) were low red blood cell count, constipation, nausea, tiredness, chest pain, fatigue, skin irritation from device use, itchy skin, and cough.

Other potential adverse effects associated with the use of Optune Lua include: treatment related skin irritation, allergic reaction to the plaster or to the gel, electrode overheating leading to pain and/or local skin burns, infections at sites of electrode contact with the skin, local warmth and tingling sensation beneath the electrodes, muscle twitching, medical device site reaction and skin breakdown/skin ulcer.

Talk to your doctor if you have any of these side effects or questions.

Caution: Federal law restricts Optune Lua to sale by or on the order of a physician. Humanitarian Device. Authorized by Federal Law for use in the treatment of adult patients with unresectable, locally advanced or metastatic, malignant pleural mesothelioma concurrently with pemetrexed and platinum-based chemotherapy. The effectiveness of this device for this use has not been demonstrated.

Please click here to see the Optune Instructions for Use (IFU) for complete information regarding the device's indications, contraindications, warnings, and precautions.

Please click here to see the Optune Lua IFU for complete information regarding the device's indications, contraindications, warnings, and precautions.

On this site, patient and healthcare professional videos as well as all images labeled as Optune users, caregivers, or healthcare professionals depict actual patients, caregivers, and healthcare professionals. All other depictions of patients and caregivers are actor portrayals. Patient images reflect the health status of the patients at the time each photo was taken.

What is Optune approved to treat?

Optune is indicated to treat a type of brain cancer called glioblastoma multiforme (GBM) in adult patients 22 years of age or older.