Jeanneane’s Caregiver’s Devotion to Serve

Responding to Jeanneane’s Diagnosis

As a mother and caregiver, Jeanneane’s diagnosis emotionally catapulted me 1,000 feet in the air and smashed me into the concrete. My world has changed since my daughter was diagnosed with glioblastoma.

Her diagnosis led me to reroute a little. I didn’t hesitate to resign from my job and move closer to Jeanneane. I panic when I can’t reach her, and I sometimes battle with fear. If she doesn’t immediately answer the phone, I
worry. Before every MRI, I experience anxiety.

I’d like to say I have balance in my life. However, balance has been thrown out the window and her well-being has become priority. It consumes my thoughts. Using my mental fly swatter, I crush any pesky thoughts of
negativity and gloom. Now, my brain can process her diagnosis and bring order to my spontaneous and intrusive emotions.

Coping is basking in the sunshine. Walking in the beauty of the forest applies balm to my soul. My support system of friends and family listen, encourage, and understand my emotions, and I’m grateful for them every single day.

I strive against being the helicopter mom of a fiercely independent woman. As a mom, I look at her and she transforms into my smart, clever, and caring little girl. I just want to embrace her in my arms and kiss away the hurt.
       

Incorporating Optune

While it was relatively quick for her, incorporating Optune into my life was quite an adjustment. I needed to figure out how to best support Jeanneane, whether it was mentally or emotionally. I researched and spoke with other GBM caregivers, and it gave me newfound sense of solace. Changing her arrays, tracking her supplies, and helping select matching hats for an outfit are all blessings.

Jeanneane is very independent. She prefers shaving her own head, packing her own batteries, and ordering her own supplies. She supports us emotionally by reassuring us she feels fine—she loves us, and she overdoes it sometimes to please us. Though she has grieved over her losses, she has never lingered in self-pity, sulked, or has been demanding. The natural born server has learned to be served.

My advice to other caregivers: it’s important to know your loved one’s limitations when using Optune. We are grateful for Optune. It’s a friend that accompanies us wherever we go, and we welcome this caregiver into our
lives!
       

Having Independence

jeanneane-and-Jenny-at-Bob-E-(1).jpg
        
Stares in public or questions from strangers were awkward and uncomfortable, but Jeanneane has always taken those moments very well. I never like to see people act in such a way around her, but her positivity allows her to handle those situations with kindness and grace.

I want people to be tender and kind to her. Occasionally she travels alone, and I pray the strangers she meets along the way will meet her with compassion. She is a strong person with a very soft heart.

I delight in her company, rejoice in her laughter, and thank God for her life! I look deep into her soul and strive to understand her better. Jeanneane is a beautiful soul—that has never and will never change.
Topics: For Caregivers
By Jenny E, Caregiver

Connect With an Optune Buddy

Find out how a Buddy could help answer your questions.

Schedule a chat  ▶

What is Optune® approved to treat?

Optune is a wearable, portable, FDA-approved device indicated to treat a type of brain cancer called glioblastoma multiforme (GBM) in adult patients 22 years of age or older.

Newly diagnosed GBM

If you have newly diagnosed GBM, Optune is used together with a chemotherapy called temozolomide (TMZ) if:

Recurrent GBM

If your tumor has come back, Optune can be used alone as an alternative to standard medical therapy if:

What is Optune Lua approved to treat?

Optune Lua is a wearable, portable, FDA-approved device indicated for the treatment of adult patients, with unresectable, locally advanced or metastatic, malignant pleural mesothelioma (MPM) to be used together with standard chemotherapy (pemetrexed and platinum-based chemotherapy).

Who should not use Optune for GBM or Optune Lua for MPM?

Optune for GBM and Optune Lua for MPM are not for everyone. Talk to your doctor if you have:

Do not use Optune for GBM or Optune Lua for MPM if you are pregnant or are planning to become pregnant. It is not known if Optune/Optune Lua is safe or effective during pregnancy.

What should I know before using Optune for GBM or Optune Lua for MPM?

Optune and Optune Lua should only be used after receiving training from qualified personnel, such as your doctor, a nurse, or other medical staff who have completed a training course given by Novocure®, the maker of Optune and Optune Lua.

What are the possible side effects of Optune for GBM and Optune Lua for MPM?

The most common side effects of Optune when used together with chemotherapy for GBM (temozolomide or TMZ) were low blood platelet count, nausea, constipation, vomiting, tiredness, seizure, and depression.

The most common side effects when using Optune alone for GBM were scalp irritation (redness and itchiness) and headache. Other side effects were malaise, muscle twitching, fall and skin ulcers.

The most common side effects of Optune Lua when used together with chemotherapy for MPM (pemetrexed and platinum-based chemotherapy) were low red blood cell count, constipation, nausea, tiredness, chest pain, fatigue, skin irritation from device use, itchy skin, and cough.

Other potential adverse effects associated with the use of Optune Lua include: treatment related skin irritation, allergic reaction to the plaster or to the gel, electrode overheating leading to pain and/or local skin burns, infections at sites of electrode contact with the skin, local warmth and tingling sensation beneath the electrodes, muscle twitching, medical device site reaction and skin breakdown/skin ulcer.

Talk to your doctor if you have any of these side effects or questions.

Caution: Federal law restricts Optune Lua to sale by or on the order of a physician. Humanitarian Device. Authorized by Federal Law for use in the treatment of adult patients with unresectable, locally advanced or metastatic, malignant pleural mesothelioma concurrently with pemetrexed and platinum-based chemotherapy. The effectiveness of this device for this use has not been demonstrated.

Please click here to see the Optune Instructions for Use (IFU) for complete information regarding the device's indications, contraindications, warnings, and precautions.

Please click here to see the Optune Lua IFU for complete information regarding the device's indications, contraindications, warnings, and precautions.

On this site, patient and healthcare professional videos as well as all images labeled as Optune users, caregivers, or healthcare professionals depict actual patients, caregivers, and healthcare professionals. All other depictions of patients and caregivers are actor portrayals. Patient images reflect the health status of the patients at the time each photo was taken.

What is Optune approved to treat?

Optune is indicated to treat a type of brain cancer called glioblastoma multiforme (GBM) in adult patients 22 years of age or older.