My name’s Jodie.
Hi, my name’s Pierre.
We live in Southern California and Pierre’s an Optune user. Taking on the role of a caregiver for a person with glioblastoma is difficult to say the least. In our family life, it’s just Pierre and I. We don’t have any children. We’ve been together for 18 years. And to be honest, he took care of me.
My role as a caregiver started the day of her surgery because that was the day that the new normal happened for us.
I was the financial provider for our family always. But he did everything else, I’m talking, I didn’t cook a meal for 17 years. And you know, now I have to do it all, including working full-time.
In the early days, directly after Darrell’s diagnosis, people would say, you’re obviously taking great care of your loved one, but what are you doing to take care of yourself? And when people asked me that question I felt panicked like, oh, now am I not only supposed to be an expert in brain cancer care, now I’m supposed to be an expert in self-care, which is something I don’t really realize I was doing before.
One of the things that I do to make my life better, to relieve stress, to stay healthy psychologically, physically, diet wise, we exercise. We eat better and we keep lots of good, positive people around us.
Being a caretaker, you’ve got to take some time to yourself, sometimes just talking to my friends on the phone, just socializing with people or I work out with a personal trainer and that was really good for me to spend one hour just not thinking about everything.
I don’t feel like I’m a caregiver. I feel like Lynn and I are a team, because in reality, the person wearing it isn’t the only person living with it.
One of the things that I have appreciated from the beginning about Optune is that Optune gives me a way to proactively, positively, hands on contribute to my husband’s continuing treatment of GBM.
But I have to do it for real just to show you Darrell’s traditional head butt, when we lay the first array. We’ve never done it on camera.
The first three months when Pierre was diagnosed, as a caretaker, was really difficult. But once he started to stabilize, we were really able to enjoy our life together. So as much as it’s always a little stressful and it’s always on your mind as the caretaker, we were really able to just put it on the back burner and try to live as normal a life as we possibly could.
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