Caregiver roles

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JODIE:

My name’s Jodie.

PIERRE:

Hi, my name’s Pierre.

JODIE:

We live in Southern California and Pierre’s an Optune user. Taking on the role of a caregiver for a person with glioblastoma is difficult to say the least. In our family life, it’s just Pierre and I. We don’t have any children. We’ve been together for 18 years. And to be honest, he took care of me.

LARRY:

00:00:22

My role as a caregiver started the day of her surgery because that was the day that the new normal happened for us.

JODIE:

I was the financial provider for our family always. But he did everything else, I’m talking, I didn’t cook a meal for 17 years. And you know, now I have to do it all, including working full-time.

ANDREA:

00:00:46

In the early days, directly after Darrell’s diagnosis, people would say, you’re obviously taking great care of your loved one, but what are you doing to take care of yourself? And when people asked me that question I felt panicked like, oh, now am I not only supposed to be an expert in brain cancer care, now I’m supposed to be an expert in self-care, which is something I don’t really realize I was doing before.

LARRY:

00:01:10

One of the things that I do to make my life better, to relieve stress, to stay healthy psychologically, physically, diet wise, we exercise. We eat better and we keep lots of good, positive people around us.

JODIE:

Being a caretaker, you’ve got to take some time to yourself, sometimes just talking to my friends on the phone, just socializing with people or I work out with a personal trainer and that was really good for me to spend one hour just not thinking about everything.

LARRY:

00:01:43

I don’t feel like I’m a caregiver. I feel like Lynn and I are a team, because in reality, the person wearing it isn’t the only person living with it.

ANDREA:

One of the things that I have appreciated from the beginning about Optune is that Optune gives me a way to proactively, positively, hands on contribute to my husband’s continuing treatment of GBM.

00:02:07

But I have to do it for real just to show you Darrell’s traditional head butt, when we lay the first array. We’ve never done it on camera.

JODIE:

The first three months when Pierre was diagnosed, as a caretaker, was really difficult. But once he started to stabilize, we were really able to enjoy our life together. So as much as it’s always a little stressful and it’s always on your mind as the caretaker, we were really able to just put it on the back burner and try to live as normal a life as we possibly could.

Hear from caregivers who offer love and support to their loved ones living with GBM.
Topics: Learning About Optune, For Caregivers

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What is Optune® approved to treat?

Optune is a wearable, portable, FDA-approved device indicated to treat a type of brain cancer called glioblastoma multiforme (GBM) in adult patients 22 years of age or older.

Newly diagnosed GBM

If you have newly diagnosed GBM, Optune is used together with a chemotherapy called temozolomide (TMZ) if:

Recurrent GBM

If your tumor has come back, Optune can be used alone as an alternative to standard medical therapy if:

What is Optune Lua approved to treat?

Optune Lua is a wearable, portable, FDA-approved device indicated for the treatment of adult patients, with unresectable, locally advanced or metastatic, malignant pleural mesothelioma (MPM) to be used together with standard chemotherapy (pemetrexed and platinum-based chemotherapy).

Who should not use Optune for GBM or Optune Lua for MPM?

Optune for GBM and Optune Lua for MPM are not for everyone. Talk to your doctor if you have:

Do not use Optune for GBM or Optune Lua for MPM if you are pregnant or are planning to become pregnant. It is not known if Optune/Optune Lua is safe or effective during pregnancy.

What should I know before using Optune for GBM or Optune Lua for MPM?

Optune and Optune Lua should only be used after receiving training from qualified personnel, such as your doctor, a nurse, or other medical staff who have completed a training course given by Novocure®, the maker of Optune and Optune Lua.

What are the possible side effects of Optune for GBM and Optune Lua for MPM?

The most common side effects of Optune when used together with chemotherapy for GBM (temozolomide or TMZ) were low blood platelet count, nausea, constipation, vomiting, tiredness, seizure, and depression.

The most common side effects when using Optune alone for GBM were scalp irritation (redness and itchiness) and headache. Other side effects were malaise, muscle twitching, fall and skin ulcers.

The most common side effects of Optune Lua when used together with chemotherapy for MPM (pemetrexed and platinum-based chemotherapy) were low red blood cell count, constipation, nausea, tiredness, chest pain, fatigue, skin irritation from device use, itchy skin, and cough.

Other potential adverse effects associated with the use of Optune Lua include: treatment related skin irritation, allergic reaction to the plaster or to the gel, electrode overheating leading to pain and/or local skin burns, infections at sites of electrode contact with the skin, local warmth and tingling sensation beneath the electrodes, muscle twitching, medical device site reaction and skin breakdown/skin ulcer.

Talk to your doctor if you have any of these side effects or questions.

Caution: Federal law restricts Optune Lua to sale by or on the order of a physician. Humanitarian Device. Authorized by Federal Law for use in the treatment of adult patients with unresectable, locally advanced or metastatic, malignant pleural mesothelioma concurrently with pemetrexed and platinum-based chemotherapy. The effectiveness of this device for this use has not been demonstrated.

Please click here to see the Optune Instructions for Use (IFU) for complete information regarding the device's indications, contraindications, warnings, and precautions.

Please click here to see the Optune Lua IFU for complete information regarding the device's indications, contraindications, warnings, and precautions.

On this site, patient and healthcare professional videos as well as all images labeled as Optune users, caregivers, or healthcare professionals depict actual patients, caregivers, and healthcare professionals. All other depictions of patients and caregivers are actor portrayals. Patient images reflect the health status of the patients at the time each photo was taken.

What is Optune approved to treat?

Optune is indicated to treat a type of brain cancer called glioblastoma multiforme (GBM) in adult patients 22 years of age or older.