Here’s howAfter I was diagnosed with GBM, I immediately decided that I was not going to give up any activity without an earnest and persistent effort to continue to do what has always been good for my body, mind, and soul.
I have been active my entire life. So, when it came to using Optune, I thought about how I would be able to stay active and do what I love.
Here are my “hows” and “whats”:
Blue light: on Heart rate: up Stress level: downMy first activity objective was to get out and walk every day. Once I formed the habit of wearing a hat anytime I was outside and carrying at least one extra battery, I worked up to walking about four to six miles as briskly as possible. And I always used a backpack or a lumbar pack to carry Optune.
Oh, and remember to talk with your doctor before engaging in physical activity! Make sure your exercise is doctor-approved before you take off.
Next up, every other activity I enjoy:
- Traveling by plane, train, and automobile to visit friends and family, I bring
- Optune along for the ride.
- Biking, which I do with Optune on my shoulders in my backpack.
- Skiing, which I also do with Optune in my backpack.
- Weight training, which I do with Optune close by.
- Hiking with Optune in my backpack.
- Ice hockey, which I do with my backpack off and my cord tucked into my pants.
- Home repairs and chores and cooking.
The great outdoors with OptuneWhen embarking on hiking or camping trips, Optune might feel like a whole lot of extra weight.
Here’s what works for me: A lightweight hiking backpack with chest and abdomen straps sized to fit Optune.
Things that are handy for your head: Wider hats or helmets, skull caps, light runners’ hats without mesh (to let the sun in), bandanas, and flexible cooling packs.
Sometimes it also helps to have: A large umbrella to shade my backpack and me from the sunlight or protect the device in the rain, a large rain jacket and poncho that can cover Optune, and a dry bag (for water activities).
When it comes to arraysI always have additional supplies prepared. I also pay attention to gel and contact integrity. I use a comfortable, sunlight-blocking hat over a moisture-wicking skullcap to keep my change schedule at about two to three days.
When it comes to percentage numbers, compliance is an average. For me, that means it comes with credits and debits. I seem to be at about 90% usage per month.
Activities reserved for change days (when I’m not using Optune) only: running at the highest pace I can manage, swimming, golfing, or any activity that makes me sweat a ton and may cause the arrays to become wet.
The spirit of adventureMindset Matters. I accepted that some activities would have changes in intensity or duration in order to maximize my time on Optune, but I remained patient with myself as well as the device to find what worked for me. It’s easy to become frustrated when dealing with extra weight. But with enough patience and adjustment, I was able to keep doing a few of the things I’ve always loved doing.
Some of my favorite activities weren’t ended by Optune. But some were. And the others required quite a bit of tweaking to get just right.
Finding that perfect balance required persistence, determination, and plenty of laughter—at myself, mostly, when my ideas failed. But while a few of my inventive solutions blunder and backslide, my excitement for exploring nature and exercising only keeps evolving—even if I am hauling a few extra pounds.