A caregiver's guide

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DEBBIE:

My name is Debbie, and I’m from Zanesville, Ohio, and I am a caretaker for my husband Bob.

ANDREA:

00:00:16

My name is Andrea. I am from Orange County, California and I am a caregiver for my husband Darrell.

JOSHUA:

My name is Joshua. I’m from Tampa, Florida and I care for my brother JB.

CATHY:

00:00:26

My name’s Cathy and I’m from Riverside, California and I care for my husband Tim. I think when a loved one is first diagnosed with GBM, as a caregiver, we have to, go slow. We have to be patient with our loved one.

DEBBIE:

My advice to other caregivers would definitely be to just be there for them and to let them know that you’re there to support them and to help them through whatever they need. So just to be there.

INTERVIEWER:

How were you there for Bob?

DEBBIE:

00:00:52

Whatever he needs, I’m willing to try to do.

ANDREA:

Optune gives you an opportunity to directly participate in your loved one’s care. What was helpful for me in supporting my husband Darrell when he was first diagnosed was the incredible support system that we had from family and friends. They built such a safety net for us, that when we stumbled and almost fell, they made sure we never hit the ground.

JOSHUA:

00:01:17

When JB was first diagnosed, I looked for information like, through our doctors and other medical workers, as well as, you know, checking the internet for resources and just seeing what is available.

CATHY:

One thing I found helpful is when people would bombard me with research, I sent stuff to my older sister and let her decipher it for me. So I think that’s the biggest thing, you know, have a support person to help you research, but be patient with your patient.

JOSHUA:

00:01:44

Do your research, get ready, prepare, talk to the people like nCompass, who you can, as well as you know, prepare a routine and get ready for that because it’s all about finding the rhythm that you can in order to integrate it into your life.

SHERRY:

Try not to dwell too much on the negative, you know, the bad. But it’s hard not to do that. But, just mainly to be there for them and support them.

CATHY:

00:02:07

It does get easier. After a few weeks, it’ll become normal routine, just takes a little bit more time to get ready to go places, but it does get easier.

JOSHUA:

00:02:20

As advice to other fellow caregivers, I would offer that they, take care of themselves, you know, in order to take care of their loved ones, because this is a marathon and not a sprint, and it is really easy to forget that.

ANDREA:

All of the caregivers that I speak with are a bit anxious, but we all get over it in a few different weeks. And what I did not realize when I started as a caregiver with Optune is that it is not an exact science about how arrays get placed. And other people are expert caregivers for their loved one the same way that soon, you will be the expert on your caring for your loved one.

Hear caregivers’ insights about caring for Optune patients and themselves.
Topics: Learning About Optune, For Caregivers

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What is Optune® approved to treat?

Optune is a wearable, portable, FDA-approved device indicated to treat a type of brain cancer called glioblastoma multiforme (GBM) in adult patients 22 years of age or older.

Newly diagnosed GBM

If you have newly diagnosed GBM, Optune is used together with a chemotherapy called temozolomide (TMZ) if:

Recurrent GBM

If your tumor has come back, Optune can be used alone as an alternative to standard medical therapy if:

What is Optune Lua approved to treat?

Optune Lua is a wearable, portable, FDA-approved device indicated for the treatment of adult patients, with unresectable, locally advanced or metastatic, malignant pleural mesothelioma (MPM) to be used together with standard chemotherapy (pemetrexed and platinum-based chemotherapy).

Who should not use Optune for GBM or Optune Lua for MPM?

Optune for GBM and Optune Lua for MPM are not for everyone. Talk to your doctor if you have:

Do not use Optune for GBM or Optune Lua for MPM if you are pregnant or are planning to become pregnant. It is not known if Optune/Optune Lua is safe or effective during pregnancy.

What should I know before using Optune for GBM or Optune Lua for MPM?

Optune and Optune Lua should only be used after receiving training from qualified personnel, such as your doctor, a nurse, or other medical staff who have completed a training course given by Novocure®, the maker of Optune and Optune Lua.

What are the possible side effects of Optune for GBM and Optune Lua for MPM?

The most common side effects of Optune when used together with chemotherapy for GBM (temozolomide or TMZ) were low blood platelet count, nausea, constipation, vomiting, tiredness, seizure, and depression.

The most common side effects when using Optune alone for GBM were scalp irritation (redness and itchiness) and headache. Other side effects were malaise, muscle twitching, fall and skin ulcers.

The most common side effects of Optune Lua when used together with chemotherapy for MPM (pemetrexed and platinum-based chemotherapy) were low red blood cell count, constipation, nausea, tiredness, chest pain, fatigue, skin irritation from device use, itchy skin, and cough.

Other potential adverse effects associated with the use of Optune Lua include: treatment related skin irritation, allergic reaction to the plaster or to the gel, electrode overheating leading to pain and/or local skin burns, infections at sites of electrode contact with the skin, local warmth and tingling sensation beneath the electrodes, muscle twitching, medical device site reaction and skin breakdown/skin ulcer.

Talk to your doctor if you have any of these side effects or questions.

Caution: Federal law restricts Optune Lua to sale by or on the order of a physician. Humanitarian Device. Authorized by Federal Law for use in the treatment of adult patients with unresectable, locally advanced or metastatic, malignant pleural mesothelioma concurrently with pemetrexed and platinum-based chemotherapy. The effectiveness of this device for this use has not been demonstrated.

Please click here to see the Optune Instructions for Use (IFU) for complete information regarding the device's indications, contraindications, warnings, and precautions.

Please click here to see the Optune Lua IFU for complete information regarding the device's indications, contraindications, warnings, and precautions.

On this site, patient and healthcare professional videos as well as all images labeled as Optune users, caregivers, or healthcare professionals depict actual patients, caregivers, and healthcare professionals. All other depictions of patients and caregivers are actor portrayals. Patient images reflect the health status of the patients at the time each photo was taken.

What is Optune approved to treat?

Optune is indicated to treat a type of brain cancer called glioblastoma multiforme (GBM) in adult patients 22 years of age or older.