A caregiver's guide
My name is Debbie, and I’m from Zanesville, Ohio, and I am a caretaker for my husband Bob.
My name is Andrea. I am from Orange County, California and I am a caregiver for my husband Darrell.
My name is Joshua. I’m from Tampa, Florida and I care for my brother JB.
My name’s Cathy and I’m from Riverside, California and I care for my husband Tim. I think when a loved one is first diagnosed with GBM, as a caregiver, we have to, go slow. We have to be patient with our loved one.
My advice to other caregivers would definitely be to just be there for them and to let them know that you’re there to support them and to help them through whatever they need. So just to be there.
How were you there for Bob?
Whatever he needs, I’m willing to try to do.
Optune gives you an opportunity to directly participate in your loved one’s care. What was helpful for me in supporting my husband Darrell when he was first diagnosed was the incredible support system that we had from family and friends. They built such a safety net for us, that when we stumbled and almost fell, they made sure we never hit the ground.
When JB was first diagnosed, I looked for information like, through our doctors and other medical workers, as well as, you know, checking the internet for resources and just seeing what is available.
One thing I found helpful is when people would bombard me with research, I sent stuff to my older sister and let her decipher it for me. So I think that’s the biggest thing, you know, have a support person to help you research, but be patient with your patient.
Do your research, get ready, prepare, talk to the people like nCompass, who you can, as well as you know, prepare a routine and get ready for that because it’s all about finding the rhythm that you can in order to integrate it into your life.
Try not to dwell too much on the negative, you know, the bad. But it’s hard not to do that. But, just mainly to be there for them and support them.
It does get easier. After a few weeks, it’ll become normal routine, just takes a little bit more time to get ready to go places, but it does get easier.
As advice to other fellow caregivers, I would offer that they, take care of themselves, you know, in order to take care of their loved ones, because this is a marathon and not a sprint, and it is really easy to forget that.
All of the caregivers that I speak with are a bit anxious, but we all get over it in a few different weeks. And what I did not realize when I started as a caregiver with Optune is that it is not an exact science about how arrays get placed. And other people are expert caregivers for their loved one the same way that soon, you will be the expert on your caring for your loved one.
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